42 | Honoring a Legacy: Advocacy and Support After the NICU with Misti Staley
EPISODE 42
In this heartfelt episode of the NICU Alumni Podcast, Misti Staley shares her profound journey as a mother who faced unimaginable challenges with her son Freeman, who spent significant time in the NICU and PICU.
After losing Freeman, Misti transformed her grief into advocacy, creating the Freeman Foundation and developing innovative solutions for families facing similar struggles. Our conversation explores the emotional rollercoaster of NICU life, the importance of community support, and the healing power of connection during times of loss. We discuss the profound impact of grief, the balance between supporting others and caring for oneself, the significance of community engagement and advocacy in healthcare, and the creation of meaningful legacies through action. Misti shares her journey of creating the Freeman Playground, and then later, establishing the FreeArm. She shares about the importance of raising awareness for tube feeding, finding joy amidst grief, and offers valuable insights and advice for parents experiencing loss.
Quick Notes from the Episode:
The emotional toll of NICU life is profound, with many ups and downs.
Transitioning home from the NICU can be daunting, especially with medical complexities.
Therapy played a crucial role in helping Misti navigate her challenges and equipping her to advocate for herself and for Freeman's needs.
Connection with other families that are in the NICU or PICU can provide comfort and understanding during tough times.
Grief is a journey. Finding joy amidst grief is possible, take things at your own pace even if it feels like a small step.
Remember you're not alone in that journey.
Tube Feeding Awareness Week - occurs every February
Follow FreeArm on Instagram
Check out The Blend Magazine
Other Helpful Links!
SPECIAL THANKS:
A special thanks to the Prolacta Bioscience Foundation for supporting the NICU Alumni podcast!
LET’S KEEP IN TOUCH:
DONATE:
You can also support our mission and help create brighter futures for babies that have graduated from the NICU (who we affectionately refer to as NICU Alumni) and their families by donating here.
The purpose of this podcast is for entertainment only and should not be viewed as medical advice.